DMSO success rates for SLE and autoimmune diseases!

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eDOC
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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#91  Post by eDOC » Thu Jan 04, 2018 12:17 pm

Dennyk wrote:Thanks again eDOC. I'll follow your advice. Like I said, I had remembered this prior post of yours, and have started taking Silymarin. Is this a good supplement that I should continue taking this long term, or just until my ALT comes back to normal?


You're welcome Dennyk. It's a great supplement, but you don't require it on a daily basis. Keeping in mind you're medical issue, I'd recommend taking 200 mg,twice weekly.
And BTW, regarding diet, just avoid refined sugars. Most stuff on the net is crap or based on lab animals, doesn't work for every one. What I am suggesting to you or have in the past to some, is total tailor made for you, based on my years of using them on humans. As you have read some of my posts, on ground things are fluid and very different. And lastly keep an eye on your lab parameters.I prefer keeping treatment plans/suggestions and life simple and not complicated.
After your next labs, might recommend to add a few...
Good luck till than..

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#92  Post by Dennyk » Thu Jan 04, 2018 3:23 pm

Once again, many thanks eDOC, My doc ordered a repeat of my CMP because of the high ALT and Tg's, which I'll see (and post) at the end of this month. My CBC won't be tested again until March. In the meantime, I will be following all of your suggestions. I hope that seeing you here, (prior to March), means that things are going well for you.

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#93  Post by eDOC » Sun Jan 07, 2018 3:42 pm

Dennyk wrote:Once again, many thanks eDOC, My doc ordered a repeat of my CMP because of the high ALT and Tg's, which I'll see (and post) at the end of this month. My CBC won't be tested again until March. In the meantime, I will be following all of your suggestions. I hope that seeing you here, (prior to March), means that things are going well for you.


You're welcome Dennyk. I find it strange, since he plans to repeat CMP end of the month, why leave CBC till March, would drawing an extra few mL, make a difference or waiting for a miracle to happen by than... I don't doubt his expertise, he must be a good human but we docs at times are a pain..
Thanks again for your thoughts. Good luck again and hope your CMP and CBC are great. I'm very positive as to your ALT would hopefully be below 25 IU.

eDOC!!


EDITED!!

And hopefully platelets nearing 200K.....my gut feeling...mostly is correct, but not always............


PS: Treated 3 patients, an elderly woman with Crohn's and a younger with Nephrotic syndrome, and a middle age man with AML, using DMSO infusions, all 3 are well/asymptomatic clinically and lab wise and are off prescriptive meds.

For AML, used IV CsCl, besides DMSO.
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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#94  Post by Dennyk » Tue Jan 09, 2018 12:37 pm

eDOC wrote:You're welcome Dennyk. I find it strange, since he plans to repeat CMP end of the month, why leave CBC till March, would drawing an extra few mL, make a difference or waiting for a miracle to happen by than... I don't doubt his expertise, he must be a good human but we docs at times are a pain..

I am very curious about the CBC numbers as well, but there are two Docs involved. My primary doctor normally only does the CMP, but ordered the first CBC almost a year ago because of repeated infections, which led him to find and diagnose my CLL. He then sent me to a cancer specialist to have it confirmed. The cancer Doc wanted to see me every 3 months and does only the CBC tests. I actually have a bit more faith in my primary doc than the specialist, (who is 60 miles away) so I talked my primary Doc into including the CBC into my normal 6 month checkup, and now only have to see the specialist every 6 months, who does only the CBC, with appointments staggered 3 months. So, my primary Doc seems to be focused on issues other than the CLL, and includes the CBC to get that 3 month reading, and keep me from driving the 60 miles. I am grateful that they found the problem, but they have no treatment plan other than wait till the numbers justify heavy drugs or chemo. In that regard, I have more faith in you (eDOC) than either of them.
eDOC wrote:Good luck again and hope your CMP and CBC are great. I'm very positive as to your ALT would hopefully be below 25 IU.
And hopefully platelets nearing 200K.....my gut feeling...mostly is correct, but not always............

The high ALT was the big concern and reason for the retest. I've been following your advice on Silymarin, and have been diligent on improving my diet, and stopped taking the high dose Vitamin A, so I feel pretty confident on the upcoming test. I previously posted lab results from last two visits of primany doc, but didn't include all the CBC tests I've had. I put together a chart of every CBC (from both labs). https://www.dropbox.com/s/hs2o3ehqwjke8 ... s.doc?dl=0
My platelets were as low as 125, and have come back to the in the test just prior to what I posted, so they have been improving. I started high dose Vitamin C in mid August, along with topical DMSO, then switched to oral DMSO on 11/19/17. The bright side might be that waiting till March for the CBC will give the DMSO more time to do it's stuff. As always, your input is greatly appreciated. I'll keep you filled in.

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#95  Post by skwoodwiva » Tue Jan 09, 2018 2:34 pm

Dennyk wrote:
eDOC wrote:You're welcome Dennyk. I find it strange, since he plans to repeat CMP end of the month, why leave CBC till March, would drawing an extra few mL, make a difference or waiting for a miracle to happen by than... I don't doubt his expertise, he must be a good human but we docs at times are a pain..

I am very curious about the CBC numbers as well, but there are two Docs involved. My primary doctor normally only does the CMP, but ordered the first CBC almost a year ago because of repeated infections, which led him to find and diagnose my CLL. He then sent me to a cancer specialist to have it confirmed. The cancer Doc wanted to see me every 3 months and does only the CBC tests. I actually have a bit more faith in my primary doc than the specialist, (who is 60 miles away) so I talked my primary Doc into including the CBC into my normal 6 month checkup, and now only have to see the specialist every 6 months, who does only the CBC, with appointments staggered 3 months. So, my primary Doc seems to be focused on issues other than the CLL, and includes the CBC to get that 3 month reading, and keep me from driving the 60 miles. I am grateful that they found the problem, but they have no treatment plan other than wait till the numbers justify heavy drugs or chemo. In that regard, I have more faith in you (eDOC) than either of them.
eDOC wrote:Good luck again and hope your CMP and CBC are great. I'm very positive as to your ALT would hopefully be below 25 IU.
And hopefully platelets nearing 200K.....my gut feeling...mostly is correct, but not always............

The high ALT was the big concern and reason for the retest. I've been following your advice on Silymarin, and have been diligent on improving my diet, and stopped taking the high dose Vitamin A, so I feel pretty confident on the upcoming test. I previously posted lab results from last two visits of primany doc, but didn't include all the CBC tests I've had. I put together a chart of every CBC (from both labs). https://www.dropbox.com/s/hs2o3ehqwjke8 ... s.doc?dl=0
My platelets were as low as 125, and have come back to the in the test just prior to what I posted, so they have been improving. I started high dose Vitamin C in mid August, along with topical DMSO, then switched to oral DMSO on 11/19/17. The bright side might be that waiting till March for the CBC will give the DMSO more time to do it's stuff. As always, your input is greatly appreciated. I'll keep you filled in.

Would you please PM me as to this brand of DMSO & source. I think is is better than posting here.

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#96  Post by ofonorow » Wed Jan 10, 2018 1:01 pm

I must have missed something, why would someone tell you to stop the high dose vitamin A? For conditions like yours, you can find studies that vitamin A is more effective than prescription chemo drugs, esp. in conjunction with Vitamin C. It stops cells dividing by encouraging differentiation. You could try reducing vitamin A to Pauling's recommended 25,000 iu (from the Cancer experts recommendation of 100,000 iu) to see if that clears whatever you are concerned about.
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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#97  Post by Dennyk » Wed Jan 10, 2018 2:18 pm

ofonorow wrote:I must have missed something, why would someone tell you to stop the high dose vitamin A? For conditions like yours, you can find studies that vitamin A is more effective than prescription chemo drugs, esp. in conjunction with Vitamin C. It stops cells dividing by encouraging differentiation. You could try reducing vitamin A to Pauling's recommended 25,000 iu (from the Cancer experts recommendation of 100,000 iu) to see if that clears whatever you are concerned about.

Owen, The following is from post #74 in this thread, stating my reasoning.
Dennyk wrote: He (my doctor) is very concerned (as am I) over the sudden jump in ALT (alanine aminotransferase), and AST ( aspartate aminotransferase). My complete results listed here
https://www.dropbox.com/s/fql4pq5l7lxdr ... t.doc?dl=0
I spent a lot of time yesterday backtracking everything I've done in the past 6 months looking for something I was taking or doing that could possibly account for it. If my regimen caused it, it would be because of one of three things, oral DMSO at 15ml twice/day, 16 to 20 grams of VC/day with my personal lipo C mix, or the 100,000 IU /day of Vitamin A. I found nothing suggesting that DMSO could have any negative effect on the liver. The following study showed a healing effect on the liver in rabbits. https://www.dmso.org/articles/ChemicalI ... chemia.pdf

If my lipo C mix had anything to do with it, it would almost have to be because of the alcohol I use to make it, but I go through a process that evaporates/pours off any excess alcohol after the liposomes are formed, and prior to incorporating the VC, so the alcohol content by volume is probably only 1 to 3%, as opposed to about 12% in most commercial versions. I figure that the total alcohol I consume in a day, via my mix, is less than .2 oz

Which leaves me with my high dose Vitamin A, (100,000 IU/day). I found several references to Vitamin A causing liver problems, two of which I've linked below.
https://www.livestrong.com/article/5172 ... -elevated/
https://www.healthextremist.com/how-i-g ... -toxicity/

While I've seen and read references here in these forums stating this dosage should be helpful, and not cause a problem, I'm stopping completely the Vitamin A, to see if lab results improve. My doctor has ordered for a repeat test in 30 days. If anyone sees flaws in my logic, I would appreciate the feedback.

pamojja responded as follows:
pamojja wrote:
Dennyk wrote: I'm stopping completely the Vitamin A, to see if lab results improve. My doctor has ordered for a repeat test in 30 days. If anyone sees flaws in my logic, I would appreciate the feedback.


I agree and would do the same till liver enzymes came down. Though if you really overloaded you liver with vitamin A 30 days probably aren't enough.

https://en.wikipedia.org/wiki/Vitamin_A#Side_effects

In general, acute toxicity occurs at doses of 25,000 IU/kg of body weight, with chronic toxicity occurring at 4,000 IU/kg of body weight daily for 6–15 months.[42] However, liver toxicities can occur at levels as low as 15,000 IU (4500 micrograms) per day to 1.4 million IU per day, with an average daily toxic dose of 120,000 IU, particularly with excessive consumption of alcohol.[citation needed] In people with renal failure, 4000 IU can cause substantial damage. Signs of toxicity may occur with long-term consumption of vitamin A at doses of 25,000-33,000 IU per day.[1]

And this from eDOC:
eDOC wrote:Dennyk,
1. DMSO DOESN'T cause a rise in ALT, TGs etc. It increases LVF, EF and decreases Ca score!

2. Who advised use to take Vit A.......any how read my post Silymarin....take 200-400 mg with DMSO shall drop to below 20 IU in 2 days.

So, my dropping the Vitamin A is to determine if it was the cause of the rise in liver enzymes, (ALT, and AST).

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#98  Post by eDOC » Fri Jan 12, 2018 2:38 pm

Dennyk wrote:So, my dropping the Vitamin A is to determine if it was the cause of the rise in liver enzymes, (ALT, and AST).


Correct. 99% if not 100%, Vit A is the cause of your raised ALT. (Whatever little I know of your med issue and supplements you are consuming in an attempt to control,monitor, and eradicate it).

eDOC!!
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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#99  Post by Dennyk » Fri Jan 12, 2018 2:47 pm

eDOC wrote:
Correct. 99% if not 100%, Vit A is the cause of your raised ALT. (Whatever little I know of your med issue and supplements you are consuming in an attempt to control,monitor, and eradicate it).
eDOC!!


Thank you eDOC. Your confirmation is appreciated.

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#100  Post by eDOC » Fri Jan 12, 2018 2:58 pm

Dennyk wrote:
eDOC wrote:
Correct. 99% if not 100%, Vit A is the cause of your raised ALT. (Whatever little I know of your med issue and supplements you are consuming in an attempt to control,monitor, and eradicate it).
eDOC!!


Thank you eDOC. Your confirmation is appreciated.


Dennyk, no need to thank. I would probably have advised simple carrot juice or/and Laetrile.

Good luck again with your labs.

eDOC!!
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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#101  Post by Dennyk » Fri Jan 12, 2018 6:26 pm

eDOC wrote:Dennyk, no need to thank. I would probably have advised simple carrot juice or/and Laetrile.

I was a little confused at first with the carrot juice since it is so high in Vitamin A, but then with a little reading, it became clear. Most of the Vitamin A in carrots is in the form of beta carotene. I found the following:

It is highly recommended that vitamin A be consumed from the diet rather than from supplements (particularly in the case of beta carotene). From http://www.carrotmuseum.co.uk/vitamina.html

High intake of provitamin carotenoids (such as beta carotene) from vegetables and fruits does not cause hypervitaminosis A, as conversion from carotenoids to the active form of vitamin A is regulated by the body to maintain an optimum level of the vitamin. Carotenoids themselves cannot produce toxicity.
From https://en.wikipedia.org/wiki/Hypervitaminosis_A

So, Vitamin A with cancer is good, (like Owen said), providing the source is a good one, ideally from a good food source. Ok, eDOC, instead of thanking you, I'll just tell you I believe you're making me a smarter and healthier person. Hopefully some good Karma for you...

I'll probably eat a bit more carrots for now, and start on some carrot juice after labs are done. And will start looking for a source of Laetrile.

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Re: DMSO success rates for SLE and autoimmune diseases!

Post Number:#102  Post by ofonorow » Sat Jan 13, 2018 12:41 pm

That's one side - the other side is the only known death from "vitamin A" was a fellow drinking gallons of carrot juice!

Some people, especially with low thyroid, cannot convert beta carotene to vitamin C.

And it is the vitamin A that is important - so if the body conversion is limited, while carrot juice is probably better than nothing, a good vitamin A supplement still makes the most sense for a soft-cancer (or any cancer) patient.
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